We’ve been a little quiet since Ben’s transplant, so here is an update. We are now at day 22, and over the last week or so Ben has been dealing with some post-transplant complications. Last weekend we learned that Ben had tested positive for both CMV and c.diff infections. Following this Ben has developed a very inflamed gut, which could be caused by the infections or one of the many drugs he is currently receiving. As a result, he is currently ‘nil by mouth’ (all nutrition is IV), and has had a lot of sickness. The good news is that in the background there are signs of engraftment, although at a gentle rate. It will likely take Ben some time to recover from this, and realistically it will take him longer to reach full engraftment and be in a state where he comes out of isolation and is discharged to the day ward.
As you might imagine, undergoing a transplant is not an easy journey (for any of us), and complications are not unexpected. Ben is showing great resilience under tough circumstances. He is in the hands of an incredible team who are very focused on his improvement to full recovery. We are all taking it one day at a time. Love to all and a big thank you to everyone for your continued support.
Day 22 eh, as each day passes Ben will be getting healthier and stronger. It must have been an arduous journey for Ben but also for you, Ginny and the girls too.
What a great team you have helping Ben work towards recovery.
Sending you all positive vibes and love ?
You Are Team Ben like lovely Hilary has said before. You are an amazing family with so many people who deeply care for you all. Hope all infections clear very soon and Ben will start to feel heaps better and home in the not too distant future with you all ❤️❤️❤️❤️❤️
I know this is a torturous procedure . Sending you and Ben best wishes x
So reassuring to get your update. Can’t believe it’s day 22 already and things seem to be going in the right direction,which is marvellous! Loads of love and hugs for all! X
Lots of good will to you all from here. Good to see there is some positive news after the transplant
Thinking of you all. Ben is amazing but not surprised seeing how strong ginny and james is. Slow and steady xxx
Just amazing. Truly amazing what you’re all achieving through this tough process. So impressed by Ben! Sending all our love and hugs, thinking of you all the time xxx